Lists

Reflex Neurovascular Dystrophy (RND) and Reflex Sympathetic Dystrophy (RSD) sites

Here are some good RND / RSD websites and myspace sites

Name	Web address	Description

RND Awareness Junior Guild	http://www.rndawareness.org	This is the guild website. Still underconstruction.

Power through Pain	http://www.tripletswhocare.org/Power_Through_Pain.html	An 18 y/o wrote a very good book on RND.

Seattle Children's Hospital	http://search.seattlechildrens.org/	type in search word: RND. Reflex Neurovascular Dystrophy is a kids version of Relfex Sympathetic Dystropy. The program at Children's Hospital is the program that my daughter went through. It saved her life!

RND info from Philadelphia's Children's Hospital	http://www.childhoodrnd.org/	Children's of Seattle and Philadelphia are the only two hospitals in the country with an RND (Reflex Neurovascular Dystrophy) program aimed at helping kids with Reflex Sympathetic Dystrophy. Dr. David Sherry started the program in Seattle 15 years ago.

RSDHope	http://www.rsdhope.org/	This is my favorite site. There is TONS of information!

Reflex Sympathetic Dystrophy Syndrome Association	http://www.rsds.org/index2.html	An association trying to spread the awareness of RSDS

RSDS / CRPS news articles	http://www.rsds-crps-news.blogspot.com/	A blog spot that features articles around the world on RSD

Rapid Recovery Hyperbarics	http://www.hbot4u.com	We spent 12 weeks here in 2007 getting Hyperbaric Oxygen Therapy

Mayo Clinic	http://www.mayoclinic.com/health/complex-regional-pain-syndrome/DS00265/DSECTION=8	Info on RSD/ CRPS

Fighting Against RSD	http://fightingagainstrsd.tripod.com/id17.html	Another good site with lots of links

But You Don't Look Sick...	http://www.butyoudontlooksick.com/2006/02/the_spoon_theory.php	Written about Lupus, but it gives you an idea of what RSDS sufferers must endure. There is a store with T-Shirts and other items to buy for a variety of afflictions.

Ashley Goodall	http://www.myspace.com/lifeneedslemonstogive	Ashley's MySpace page. This is the girl who started Rock out to Knock ou RSD.

Fight RSD	http://www.myspace.com/fightrsd	another MySpace page

ROCK OUT TO KNOCK OUT RSD, INC.	http://www.tkorsds.org/	This foundation was started by a 16 y/o with RSD